GeneEQUAL
About the Research Project
The GeneEQUAL project is designed to enable the development and delivery of a world-leading, respectful, and inclusive genomic model of healthcare for people with intellectual disabilities. GeneEQUAL is a five-year, national research partnership involving individuals with intellectual disabilities, healthcare workers, First Nations researchers, and teachers. The program works in partnership to ensure that all people with intellectual disabilities are respected and have access to inclusive genetic healthcare. This is achieved by listening to people about genetic healthcare, understanding what works for them, and identifying areas for improvement.
GeneEQUAL talks to:
- People with intellectual disabilities who have and have not received genetic healthcare.
- Family members and supporters of individuals with intellectual disabilities.
- Healthcare providers.
Impact
GeneEQUAL will develop healthcare resources and inform genetic healthcare that is culturally safe and effective for everyone. It will co-produce information and health literacy resources about genetic healthcare, such as Easy Read booklets and educational videos. An example of what GeneEQUAL has co-produced is the “GeneEQUAL Educational Toolkit for Communicating with People who have Intellectual Disability”.
Partners
Lead Research Institute
- University of New South Wales - Lead Investigator: Emma Palmer
CQUniversity Research Investigator
Sustainable Development Goals (SDG)
At CQUniversity we are committed to embedding sustainable practice in our operations, interactions and relationships, underpinned by the United Nations Sustainable Development Goals. Sustainability is one of our strategic pillars within our Strategic Plan 2019-2023.
This project aligns with the following SDG Goals:
- 3 – Good Health and Wellbeing
- 10 – Reduced Inequialities
