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Caring for Carers of People with Dementia Project

Researchers: Professor Lynne Parkinson, Annie Banbury, Dr Steven Gordon, Dr Biplob Ray, Professor Denise Wood

Industry partner: Global Community Resourcing

We would like to introduce you to the Caring for Carers Program, a new free program for regional and isolated Australian carers of people with dementia. In rural Australia, knowledge about availability and utilisation of support by informal carers is not optimal, despite the many resources generally available for carers of people with dementia. Caring can be a special challenge for those who live in rural areas, where resources may be less accessible. We know that developing social networks that can be continued into the post-care period can improve outcomes for this expanding group of predominantly older people. The mission of the Caring for Carers Program is to connect carers with other carers for peer support and social network augmentation.

A multidisciplinary national and international team, coordinated from CQUniversity, has been funded through the Australian Government Department of Health Dementia and Aged Care Services Fund to evaluate feasibility, acceptability and effectiveness of video conferencing to connect carers with other carers. While this technology has been tested with people with chronic disease, connecting carers is a new and promising innovation.

The Caring for Carers Program has been developed using a co-design approach, capturing the shared experiences and unmet needs of informal carers of people with dementia, to underpin the content of the program.

Our next challenge is to attract carers to this new free program. We are approaching service providers, peak organisations, health professionals and community organisations to spread the word about this great opportunity for carers to connect with other carers, and increase their resilience for the important role they have undertaken. We would appreciate your help in letting Carers know about this project.

Research Approval

This project has received approval from CQUniversity’s Human Research Ethics Committee (20926). This project is being carried out as per the National Statement on Ethical Conduct in Human Research (2007) produced by the National Health and Medical Research Council of Australia. This statement has been developed to protect the interests of those who agree to participate in human research studies.

Contact Information

Questions and further information
Contact the Project Team to find out more or register your interest

Atosha Clancy (Project Manager)
Email: carers@cqu.edu.au
Tel: 0437 579 695